Interesting to see someone else with this condition on YC . If you don't mind me asking, which area are you in and if you could PM the info of the optometrist. I am wearing sclerals as well, but the cost was far higher - around $5000 for the first round, and around $3500 when I went back 3 years later to see if we can improve vision and comfort even further. On the other hand, the fitting process was much more efficient - there was a new set of lenses ready daily, so although we went through 9 lenses for the right eye and 4 for the left on the first round, it took under 2 weeks.
Did you end up doing CXL? Are you considering it, or any of the other procedures.