In a vacuum it appears absurd, but to understand why people feel this way, you have to look at the big picture of health care costs spiraling out of control and people literally having to choose between food or meds. Middle class people without health insurance and good retirement savings can end up in poverty because of an unexpected illness. Any attempt at health insurance reform gets twisted and maimed into baseless political showboating—I know several people who voted for Trump because they actually believe he can lower their health insurance bills, the fools.
When people think of a photo sharing app they are thinking of breezy fun social media times. When people think of rare disease treatments the sentiment is much darker a priori. I'm not saying drug companies are to blame for the current situation (hate the game not the player), but emotionally it's obvious why there is judgement about profiting from that situation.