See these links for more regarding treatment in the US:
[0] Long Atlantic article - https://www.theatlantic.com/health/archive/2014/07/should-we...
[1] Brief NBC article with a couple interviews - http://www.nbcnews.com/id/6994580/ns/health-childrens_health...
The patient should always be informed of their condition and what the therapy or surgery that they are undergoing is about.
Not only do my doctors lie, the records such as a x-ray which the radiologist was so shocked by despite forewarning to sieze the screen out of my sight, is destroyed or deleted. I struggled to walk much of last summer.
I'm amazed that I got ... I'm amazed I survived.
As for finding support our there being in London... There's none. Full stop. Period.
Oh and the fun only is hinted at here. Imagine where I found out first.. if you could guess how, you'd be psychic. Or heaphrodite. It seems to be edited now, but the Wikipedia article had it that hermaphrodites are noted throughout history for ability to predict the future, usually the unfortunate future. I reflected on the statement and realised that humans just spend far too much time dwelling on bad things despite being massively de risked in modern society. Unless you're hermaphrodite and don't know it. If you ponder how this can be undiscovered so long, the missing information is a heretofore blocked out epic history of suffering abuse.
I'm posting this because of my fear anyone else like me has been in far less confident or provident situations and the least I can offer you if this is you is a guaranteed laugh at my expense. I'm slowly getting patched in to the real world needs of addressing the concomitant problems and may be able to help in some practical ways despite I sadly must disclaim any promise as the whole proposition is new to me and I barely caught my breath just now.
But if the doctors really cared about it enough they could have simply refused to say anything, forwarding questions to the parents instead. But instead they made up an imaginary condition.
A fun fact about the idea that you can ask for your medical records, is that the staff may redact any information they think would be harmful to you.